House Bill #5178 (2019)

AN ACT RELATING TO HEALTH AND SAFETY -- ESTABLISHING A PROGRAM WITHIN THE DEPARTMENT OF HEALTH TO ADDRESS ALZHEIMER'S DISEASE

Establishes the Rhode Island Program to address Alzheimer's disease.

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  • 2019 – H 5178
  • 2019 – H 5178 SUBSTITUTE A
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  • LC000452
  • LC000452/SUB A
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  • S T A T E O F R H O D E I S L A N D
  • IN GENERAL ASSEMBLY
  • JANUARY SESSION, A.D. 2019
  • ____________
  • A N A C T
  • S TATE OF RHODE IS L AND
  • IN GENERAL ASSEMBLY
  • JANUARY SESSION, A.D. 2019
  • ____________
  • A N A C T
  • RELATING TO HEALTH AND SAFETY – ESTABLISHING A PROGRAM WITHIN THE
  • DEPARTMENT OF HEALTH TO ADDRESS ALZHEIMER'S DISEASE
  • DEPARTMENT OF HEALTH TO ADDRESS ALZHEIMER'S DISEASE
  • Introduced By: Representatives Shekarchi, Noret, Ackerman, McNamara, and Jackson
  • Date Introduced: January 24, 2019
  • Referred To: House Health, Education & Welfare
  • It is enacted by the General Assembly as follows:
  • SECTION 1. Title 23 of the General Laws entitled "HEALTH AND SAFETY" is hereby amended by adding thereto the following chapter:
  • CHAPTER 1.7
  • THE RHODE ISLAND PROGRAM TO ADDRESS ALZHEIMER'S DISEASE
  • 23-1.7-1. Purpose.
  • (a) In view of the substantial negative impact Alzheimer's disease has on tens of thousands of Rhode Island residents, the subsequent loss of employment and longevity, and the consequential economic loss, there is hereby established a Rhode Island program to address Alzheimer's disease.
  • (b) The purpose of the program shall include, but not be limited to, the following:
  • (1) Accelerating the development of treatments that would prevent, halt or reverse the course of Alzheimer's disease;
  • (2) Coordinating the health care and treatment of individuals with Alzheimer's disease;
  • (3) Ensuring the inclusion of ethnic and racial populations who have a higher risk for Alzheimer's disease or are less likely to receive care in clinical, research and service efforts, with the goal of decreasing health disparities in the diagnosis and treatment of Alzheimer's disease;
  • (4) Coordinating with Federal agencies and programs to integrate resources and information in the treatment and prevention of Alzheimer's disease;
  • (5) Providing information and coordination of Alzheimer's research and services across state agencies and departments; and
  • (6) Implement a strategy to increase the diagnostic rate for Alzheimer's disease.
  • 23-1.7-2. Duties – Director of the department of health.
  • The director of the department of health shall develop and carry out an assessment of all state programs that address Alzheimer's disease and shall maintain and annually update the Rhode Island state plan for Alzheimer's disease and related disorders, and promulgate rules and regulations to implement the purpose of this chapter.
  • 23-1.7-3. Creation of advisory council.
  • (a) There is hereby established a council to be called the "Advisory Council on Alzheimer's Disease Research and Treatment." The advisory council shall consist of thirteen (13) members to be composed as follows: the lieutenant governor, or designee; the director of the department of health, or designee; the director of the division of elderly affairs, or designee; the chairperson of the long-term care coordinating council; one member appointed by the speaker of the house; one member appointed by the president of the senate; and seven (7) members appointed by the governor. The members appointed by the governor shall include one member who is an Alzheimer's disease patient advocate; one member who is an Alzheimer's disease caregiver; one member who is a health care provider; one member who is a researcher with Alzheimer's-related expertise in basic, translational, clinical or drug development science; one member who is a representative from an Alzheimer's disease organization that funds research and has demonstrated experience in care and patient services; one member from an Alzheimer's advocacy organization that provides services to families and professionals, including information and referrals, support groups, care consultation, education and safety services; and one member who is a representative of a health care insurer. Advisory council members shall select their own chairperson. Seven (7) members shall constitute a quorum.
  • It is enacted by the GeneralAssembly as follows:
  • SECTION 1. Title 23 of the GeneralLaws entitled "HEALTH AND SAFETY"is hereby amended by adding thereto the following chapter:
  • CHAPTER 1.7
  • THE RHODE ISLAND PROGRAM TO ADDRESS ALZHEIMER'S DISEASE
  • 23-1.7-1. Duties – Director of the department of health.
  • The director of the department of health shall develop and carry out an assessment of all state programs that address Alzheimer's disease and shallmaintain and annually update the Rhode Island state plan for Alzheimer's disease and related disorders, and promulgate rules and regulations to implement the purpose of this chapter.
  • 23-1.7-2. Creation of advisory council.
  • (a) There is hereby established a council to be called the "Advisory Council on Alzheimer's Disease Research and Treatment." The advisory councilshallconsist of thirteen (13) members to be composed as follows: the lieutenant governor, or designee; the director of the department of health, or designee; the director of the division of elderly affairs, or designee; the chairperson of the long-term care coordinating council; one member appointed by the speaker of the house; one member appointed by the president of the senate; and seven (7) members appointed by the governor. The members appointed by the governor shall include one member who is an Alzheimer's disease patient advocate; one member who is an Alzheimer's disease caregiver; one member who is a health care provider; one member who is a researcher with Alzheimer's-related expertise in basic, translational, clinical or drug development science; one member who is a representative from an Alzheimer's disease organization that funds research and has demonstrated experience in care and patient services; one member from an Alzheimer's advocacy organization that provides services to families and professionals, including information and referrals, support groups, care consultation, education and safety services; and one member who is a representative of a health care insurer. Advisory councilmembers shallselect their own chairperson. Seven (7) members shallconstitute a quorum.
  • (b) The member appointed by the speaker of the house, the member appointed by the president of the senate, and three (3) members appointed by the governor shall be initially appointed for a term to expire July 1, 2020, and four (4) members to be appointed by the governor shall be initially appointed for a term to expire July 1, 2021. After the initial term, the appointed members shall serve two (2) year terms, until their successor is appointed.
  • 23-1.7-4. Advisory council responsibility.
  • 23-1.7-3. Advisory council responsibility.
  • (a) The advisory council shall meet at least quarterly and shall advise the governor, speaker of the house and president of the senate on developments and advances on the diagnosis, treatment and prevention of Alzheimer's disease.
  • (b) In coordination with the department of health, the advisory council shall determine the number of residents diagnosed with Alzheimer's disease to ascertain the number of residents diagnosed with early-onset Alzheimer's disease, regardless of age.
  • (c) The advisory council shall identify available resources and services needed for the treatment and care of residents diagnosed with Alzheimer's disease.
  • (d) Annually, not later than March 1, the advisory council shall provide a report to the director of the department of health with a copy to the governor, the speaker of the house and the president of the senate which shall include:
  • (d) Annually, not later than March 1, the advisory council shall provide a report to the director of the department of health with a copy to the governor, the speaker of the house and the president of the senate which shallinclude:
  • (1) Information and recommendations on Alzheimer's disease policy;
  • (2) An evaluation of all state-funded efforts in Alzheimer's disease research, clinical care, institutional, home-based and community-based programs; and
  • (2) An evaluation of allstate-funded efforts in Alzheimer's disease research, clinicalcare, institutional, home-based and community-based programs; and
  • (3) Recommended amendments, updates and changes to the state plan for Alzheimer's disease and related disorders.
  • 23-1.7-5. Assessment protocol.
  • (a) The director of the department of health shall establish and publish an Alzheimer's disease assessment protocol specifically focused on recognizing the signs and symptoms of cognitive impairments, including, but not limited to, Alzheimer's disease and appropriate resource information for effective medical screening, investigation and service planning.
  • 23-1.7-4. Assessment protocol.
  • (a) The director of the department of health shall establish and publish an Alzheimer's disease assessment protocol specifically focused on recognizing the signs and symptoms of cognitive impairments, including, but not limited to, Alzheimer's disease and appropriate resource
  • LC000452/SUB A - Page 2of 4 information for effective medicalscreening, investigation and service planning.
  • (b) The director of the department of health shall make available upon request a copy of the assessment protocol to protective services caseworkers, health care professionals and members of the public.
  • (c) Protective services caseworkers assigned to or employed by the department of elderly affairs shall be familiar with the information contained in the assessment protocol.
  • 23-1.7-6. Medical professional training.
  • 23-1.7-5. Medical professional training.
  • (a) All physicians licensed pursuant to chapter 37 of title 5, and nurses licensed pursuant to chapter 34 of title 5, shall, no later than October 1, 2021, complete a one-time course of training consisting of a minimum of one hour of instruction on the diagnosis, treatment and care of patients with cognitive impairments including, but not limited to, Alzheimer's disease and dementia.
  • (b) The department of health shall promulgate rules to implement the training requirement of subsection (a) of this section.
  • 23-1.7-7. Health care facility plan.
  • 23-1.7-6. Health care facility plan.
  • (a) Every health care facility as defined in § 23-7-2 shall, not later than October 1, 2021, complete and implement an operational plan for the recognition and management of patients with Alzheimer's disease or dementia.
  • (b) The department of health shall promulgate rules and regulations to implement the operational plan requirements of subsection (a) of this section.
  • SECTION 2. This act shall take effect upon passage. ======== LC000452 ========
  • EXPLANATION
  • BY THE LEGISLATIVE COUNCIL
  • OF
  • A N A C T
  • RELATING TO HEALTH AND SAFETY – ESTABLISHING A PROGRAM WITHIN THE
  • DEPARTMENT OF HEALTH TO ADDRESS ALZHEIMER'S DISEASE
  • SECTION 2. This act shalltake effect upon passage.
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  • LC000452/SUB A
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  • LC000452/SUB A - Page 3of 4
  • EXPLANATION
  • BY THE LEGISLATIVE COUNCIL
  • OF
  • A N A C T
  • RELATING TO HEALTH AND SAFETY – ESTABLISHING A PROGRAM WITHIN THE
  • DEPARTMENT OF HEALTH TO ADDRESS ALZHEIMER'S DISEASE
  • ***
  • This act would establish the Rhode Island program to address Alzheimer's disease. It would also create a thirteen (13) member advisory council. This act would also establish a training requirement for medical professionals.
  • This act would take effect upon passage. ======== LC000452 ========
  • This act would establish the Rhode Island program to address Alzheimer's disease and would also create a thirteen (13) member advisory council. This act would also establish a training requirement for medical professionals.
  • This act would take effect upon passage. ======== LC000452/SUB A ========
  • LC000452/SUB A - Page 4of 4

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